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NAVIGATING YOUR HEALTHCARE JOURNEY: Lessons Learned to Get the Care you Need and Deserve

By Charlene Rothkopf, MA and Z. Colette Edwards, MD, MBA

Navigating the healthcare system can be one of the most difficult and complicated journeys you can take. If you are facing an acute illness or living with a chronic condition and finding it difficult to make your way through the healthcare system—not sure of the right type of doctor you need, or the right place to go for help, or perhaps you are uncertain about how your health insurance works—this book can help you, the patient or caregiver, gain the knowledge and confidence to advocate for yourself (and your loved ones) and obtain the care you deserve throughout your unique healthcare journey. We offer no medical advice, nor do we promote one type of treatment, clinician, or institution over another; we provide you with information and further resources to guide you through the process.

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  • “Everyone needs a navigator for our $4 trillion, impossibly complicated healthcare system. Sadly, most patients never get the personal attention they so deserve. Enter Edwards and Rothkopf with the best navigation system I have ever seen. Everyone will be a patient, and everyone needs to read this book.”
    DAVID NASH, MD, MBA
    Founding Dean Emeritus, Jefferson University College of Population Health Dr. Raymond C. and Doris N Grandon Professor Editor-in-Chief, American Journal of Medical Quality and Population Health
  • “Navigating Your Healthcare Journey is the go-to practical guide for patients and their families traversing the often tortuous terrain known as the U.S. healthcare experience. Common healthcare terms are translated to provide an easy-to-follow understanding of complex care.”

    SARIA (CARTER) SACCOCIO, MD, MHA, FAAFP
    East Region Chief Medical Officer, CareMore Health
  • “The book is excellent, and I say that with the highest praise. It is easy to read, clear, and understandable. I liked the format—filled with enough information and great stories which are engaging and thought-provoking. I can’t tell you which chapter I liked the best because they were all great.”

    Carol Oravec, RN
    Registered Nurse
  • “This highly readable, engaging book provides a useful compass to anyone trying to navigate the complexities of our healthcare system.”

    DAVID B. HELLMANN, MD, M.A.C.P.
    Aliki Perroti Professor of Medicine, Johns Hopkins University School of Medicine Director, Johns Hopkins Center for Innovative Medicine
  • “Navigating Your Healthcare Journey is a compilation of the expertise, compassion, care and the lived experience of these passionate healthcare professionals. Their years in the service of others at all levels of our healthcare system delivers a skillful meshing of science, storytelling, education and empowerment.

    Both comprehensive and concise, this well researched guide is the ideal companion as one journeys, as patient and advocate, through the morass that is healthcare in this country today. It provides the tools to address healthcare decisions with awareness, focus and confidence. You will refer to this guide often as a trusted resource – its format is readable, informative and actionable.”

    MAGDA BARINI-GARCIA, MD, MPH
    Health Policy Physician Former Senior Medical Advisor on Minority Health & Health Disparities and Quality For the Health Resources and Services Administration (HRSA) Center for Quality Captain, United States Public Health Service (Retired)
  • “Navigating Your Healthcare Journey is filled with useful and understandable information about how our healthcare system works. This practical guide should be required reading for healthcare management students and medical, nursing, and other health professional students. It is refreshing to see things from the view of the patient and understand in human terms the challenges they face with our healthcare system each and every day!”

    AMANDA HOPKINS TIRRELL, MBA, FACHE
    President and Founder, Hopkins Tirrell & Associates, LLC
  • “I know the authors personally, and I have been repeatedly impressed with their knowledge, experience, thoughtfulness, and their writing. In today’s health landscape, almost everyone can benefit from a health advocate. It doesn’t matter if you’re educated, well-read, highly successful, wealthy, or poor. The medical system is an inscrutable behemoth that even perplexes medical professionals. Don’t underestimate the value of an experienced advocate! Read this book and you’ll be much better off for it. Best of health!”

    MARK LIPONIS, MD
    Internist at Stonover Health & Wellness Former Chief Medical Officer at Canyon Ranch Co-author of Ultraprevention Author of Hunter/Farmer Diet Solution and Ultralongevity
  • “Navigating Your Healthcare Journey is essential reading for anyone trying to access, coordinate, or live with a chronic condition. I wish our healthcare system did not need such a book. Yet it desperately does. Our healthcare system is confusing, chaotic, and clunky, rather than coordinated and compassionate. Ms. Rothkopf and Dr. Edwards bring tremendous lived experience, profound passion, and compassion to help ensure those needing care can be as healthy as they can be. Their recommendations are grounded in science, ruthlessly practical, and provide deep insights for all.”

    PETER PRONOVOST, MD, PHD
    Chief Clinical Transformation Officer at University Hospitals Former SVP, Patient Safety & Quality, Johns Hopkins Founder and former Director of Johns Hopkins Armstrong Institute for Patient Safety & Quality
  • “The best that healthcare has to offer has never been better, while getting the best out of healthcare has never been harder. This book is an essential guide to anyone who is, was, or ever will be a patient; to anyone who has, or will ever have a loved one in need of urgent care. In short: all of us!”

    DAVID L. KATZ, MD, MPH, FACPM, FACP, FACLM
    Founder and CEO, Diet ID and the True Health Initiative Past President, American College of Lifestyle Medicine Founding Director, Prevention Research Center, Yale University - Griffin Hospital
  • “The personal stories and lessons learned in Navigating Your Healthcare Journey highlight the importance of taking ownership of your health and of being your own advocate. It shares personal experiences of what can go wrong in this complicated, fragmented health care ecosystem when information isn’t readily available to get the right care at the right time in the right place. Navigating Your Healthcare Journey is a wake-up call for patients and caregivers to proactively seek out resources to help understand treatment options and where to go for care.”

    BRIAN MARCOTTE
    Past CEO and President, Business Group on Health Former Honeywell Executive

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